Another guest article by my husband. – Marta
By the end of last week, were struggling at home — keeping Marta from food and hydration failure — and landed back in the hospital on Saturday (4/27) afternoon. Herein lies a story of success. Getting Marta stabilized. Getting healthcare forces marshalled. And by today, she is much better.
By better, I mean she can breath and eat and do the normal bodily functions… just not in the quantity and quality necessary long term. But that will come. She’s going into some more chemo next week. We are confident in our doctors, nurses and grateful for the huge support we’re getting from the hospital community and Marta’s community at large.
Marta has a confounding disease. This was the week where we got everyone on the same page about how much of a wild card her body is. In some ways you need to think of Marta as a really strong body that has a matrix of conditions a person with advanced cancer would experience. The cancer is creating all of these conditions (with latin and greek names like illius and ascites) in a rapid build up over these first few months… a reaction to the cancer, not the cancer itself.
It would be overstating it to say we have clear, definitive evidence of a turnaround, but we are accumulating it. By turnaround, I’m talking about the headline item: clear cell cancer. For example, her paracentesis this week was 64% of what is was last week for the same time period. This during a period of good IV hydration and smaller bowel load. There are other indications. Again, the next 4 weeks will be critical.
We anticipate being in the hospital for another week, at least. Managing her symptoms is too hard from home. But your support and prayers are helping us a lot. I want to give a particular shout out to Marta’s support group here who has organized many hours of Marta (and David) care.