Archive for Commentary on Chemo

The limits of knowledge

Abstract view from Kohler Plaza, 10th Floor OHSUThis is a guest column by my husband, David Frackelton. I’m continuing to do the battle of the bulge, specifically my bloated belly. If you do anything for yourself today, be thankful for a functioning bowel. – Marta

“This has been the most difficult week of my life,” Marta said to me last night. I don’t agree, but then I’ve only been a witness to her suffering.

Let’s get the important disclaimers out of the way. We are receiving good to excellent care here at OHSU. Good when we have caring people who do their jobs with diligence and intelligence. Excellent when we have fearless partners in our continuing battle toward health. This hospital is, after all, a complex organization. As we float from day shift to swing to nights, we experience a new set of care givers who, among their many duties, engage with Marta’s rare cancer and the resulting conditions. Nausea. Pain. Constipation. Lack of nutrition.

And so we reached the milestone of a week in the hospital last night.
Read More →

Expecting the unexpected

Palm Trees in Scottsdale ArizonaThe good news is that Scottsdale, AZ in the spring is lovely and warm. We were there for vacation.

The bad news is that my digestive system stopped working for a while and Dave took me directly from PDX airport to OHSU Emergency upon our return. They are working hard to jump start my digestive system, which had stopped functioning due to Ascites.

Here is a link to information my condition, which is a symptom of my recurrance of ovarian cancer.

Learn more about ascites on wikipedia.

I spent the night and with good drugs and IVs I’m heading on to real food later this morning. My vitals were and continue to be good so this is expected to be a fairly quick turnaround to something more normal.

In any case my next chemo will be this friday. Along with the chemo will be a drug (Avastin) that is known to be particularly good for reducing or eliminating Ascites. Pray for me that it works.

Thank you all for the love and kind words.

Recurrence

About a month back, my clear cell ovarian cancer was officially diagnosed as “recurring”. It took a CAT scan to confirm what I think (in retrospect) I had known since late January.

Since then, it’s been a whirlwind of google research, second opinions and spiritual quandary. It was not supposed to come back.

But it has, and so it is time to write again, to share my reflections on life and to post occasional updates on my health to those of you I love – and who love me.

I’ve had one chemo treatment with Doxil. Another next week. Am switching doctors to Dr. Pejovic up at Oregon Health Sciences University, our local research hospital. She’s a gynecologic oncologist who is curious and passionate and willing to step fully into partnership with us.

We’ll be supported by consultation from Dr. Barbara Goff, head of the ovarian cancer wing of Seattle Comprehensive Cancer Alliance. Dr. Goff’s deep knowledge of current clear cell research will help us with decisions down the road.

I am more than my body. I am more than my cancer. I am a being of love and light, connected energetically with all that is. For several weeks, I attempted to live “with Hope” as my mantra. Didn’t work very well. I think instead I need to live with “allowing”, trusting that the universe is unfolding in exactly the right way at exactly the right time….and that my role in the universe is not yet fully written.

God in Yoga

I’m still pumped up on steroids from yesterday’s final treatment.  Last night Dave and I watched the second season of Sherlock, an episode of Slings and Arrows and House.  Then I was up til 1 a.m. reading the new book, Wild, about the woman, Cheryl Strayed, who solo hiked the Pacific Crest Trail.

This morning, I took a 40 minute walk with Dave. The longest walk in six weeks. Rhododendrons are blossoming in all colors and quantities – it’s a glorious morning in the ‘hood.  Even knowing the energy comes from the steroids, it still felt like I’m healing.

And I discovered that my gimpy right leg has gotten better.  When I had surgery  in January, I came out of it with some sort of damaged nerve that shut down the adductor muscle in my upper right thigh.  After the operation, I could not move my right leg from side to side without using my hands.  My leg was a dead weight.

I’ve been walking daily since then.  At first the leg dragged and it took all my concentration to walk.  As I built strength back, my gait got gallopy.  I concentrated on lining my feet up parallel but usually my right foot pointed out at a 45 degree angle.

Sort of slowed me down.  My surgeon said this condition is not abnormal for hysterectomy patients.  “Usually,” he told me, “it corrects itself within the first year.”  Personally, I think it’s because they stuff you into the stirrups for 4 hours and something in your hips “unlocks”, and if they even TOUCH your big nerves, the ones that move all the way down the spine to your toes it contracted into some sort of semi-permanent spasm.

I find that there have often been times when my stories “cover” for my doctor’s insufficient answers.  The Internet allows us, as patients, to commiserate and share stories, and this post-op leg nerve weakness is discussed between women on ALL the hysterectomy forums.

I tried acupuncture treatments, with some relief but without success.  I finally decided I would eventually go into physical therapy if it didn’t come all the way back on its own.  I am a hiker and a walker, and life with a gimpy leg is not part of my future, if I can fix it.

Last week I went to neighborhood yoga with Bonnie.  One of the hip/stretching exercises released something, and my leg was almost completely normal today.

God it felt wonderful!  God, I am grateful!